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Sunday, October 31, 2010

Senioritis?

Do we have a case of senioritis in this house?  Well, not exactly.  Not yet.  After all, it is only first semester.  But we do have a senior! I realized that I haven't given an update on Moira in quite a while, so I thought I'd get some family members up to speed on her.  Moira's the type of gal who knows who she is, what she wants to do, where she wants to go, and when. She is a very confident young lady.  (So confident that she doesn't bat an eye at committing to sewing 40 skirts for her dance school in a weekend.  Ha! That's another story.....Let's just say that Grandma M came for a visit at just the right time!).  Back to senioritis....For the last couple of years, Moira has had her heart set on attending Franciscan University in Steubenville, Ohio.  She would like to study nursing starting next fall.  In late September she sent her application to FUS, and while she and Eileen were visiting Tim and Suzy in Steubenville with Grandma and Grandpa D, she received the letter of acceptance.  She was very excited!  Last week, she received a (relatively) small academic scholarship - also exciting!  Of course we have to do some serious money crunching, but God willing, this would be "Plan A" for Moira in the fall.

For now, thankfully, her senior year is not too overwhelming.  She is taking American government, Catholic doctrine, advanced biology with anatomy and health.  She also continues to be very involved with Irish dancing in addition to working about 20 hours or so per week at the Packer Pro Shop. So, it's all good. We are very proud of Moira.  Just one question....where oh where did the time go??!! 

Friday, October 29, 2010

How do you Spell Trouble? I Think it Starts with an "S"

 What?!?  You want to know if I like to eat markers?





As a matter of fact, I do.  Thankyouverymuch.  I especially like them with a little crunch, you know, with some fall leaves that I find on the ground...



 
And while you're wondering, I'll take your lens cap...




 
I also like to throw my sisters' clothes in the toliet.  Too bad they don't flush very well.




 
And it's a very good thing I have a get away car, because they're always after me!  Gotta go!

Monday, October 25, 2010

Our Little Flower

Molly Grace takes part in a lovely little girls group called Little Flowers.  It is a group, sort of like Brownies, but with a Catholic focus.  The group is named after St. Theresa of Liseieux because she is such a model of virtue.  Each month the girls focus on a different virtue, such as obedience, love, hope and faith, to name a few.  The girls earn little patches that form the petals of a flower.  By the time they are done, they have a complete flower which is sewn onto their special Little Flowers canvas bag.  It is just a sweet, sweet program.  When I remember to buy ink to put in my printer, I'll scan a picture of MG with her friends (yes, I know that no ink is required to scan but that's the way my printer rolls....no ink and it cannot do anything!).

Given all that....

The other day Aidan was mad at Molly Grace for something (don't remember what).  He said, "Molly Grace, you are not a Little Flower, you are a WEED."  Ouch.  Now, that was just not nice!  But I have to say, I thought it was rather funny. I promise I went into the other room to laugh so they couldn't see me :)  Now, does anyone know of a nice little virtue program for nine year old boys??!!

Sunday, October 24, 2010

Down Syndrome Adoption - {31 For 21}

Life has been busy and I have not been able to keep up with a Ds Awareness post each day.  Maybe since I have been working on this adoption post for a few days now, it will count as two :)

While our family feels incredibly blessed and enhanced by Erin's extra 21st chromosome, other families, for whatever reason, feel overwhelmed when given the diagnosis.  There are a number of factors, some real and some perceived, that contribute to that overwhelming feeling.  Many parents (up to 90%) feel so overwhelmed before the birth of their son or daughter with Ds that they decide on abortion.

I want to draw attention to the adoption option for children with Ds. The Down Syndrome Association of Greater Cincinnati has a National Down Syndrome Adoption Network which handles many domestic adoptions for children with Ds.  They have a wonderful program, serving both birth parents who choose not to parent their child, and adopting parents. Because of the high abortion rate of babies with Ds in our country, the demand to adopt a child with Ds is quite high.  Last I heard, there is a waiting list of about 200 families. My friend Jill recently adopted a four year old boy with Ds who, I believe, was networked through this organization (Jill if you're reading this, correct me if I'm wrong :) Another friend, Ruthann, was blessed with the adoption of Micah, not through the NDSAN, but with another agency right here in NE Wisconsin. Many people just do not realize that there are plenty of families who are waiting to adopt a child with Ds in this country. In fact, since Erin's birth, I have noticed a trend regarding Ds adoptions.  Many families who have a biological child who happens to have Ds, later (after the shock wears off), seek to add to their family by adopting another child with Ds.

Because of this wait-time in our own country, many families seeking to adopt a child with Ds turn to international adoption, where the situation is much different. Many counties in Eastern Europe, and other poorer countries around the world who lack the technological advancements of prenatal testing, have a more realistic representation of Down syndrome birth rates (fewer terminations). This, coupled with fewer resources and a lingering stigma associated with parenting children with special needs, results in more children than there are families willing to adopt. They have orphanages in these countries.

Enter Reece's Rainbow! Reece's Rainbow in an international Down syndrome orphan ministry.  They offer adoption grants, advocate for orphaned children, support the birth families and walk adopting families through the process of international adoption. They are doing incredible work. I am especially excited about their new program called Connecting the Rainbow.  The long-term goal of Connecting the Rainbow is to eliminate the need for Reece’s Rainbow by serving as a catalyst for social change abroad.  These families who have children with special needs need resources and RR is coming to the rescue.  My prayer is that CTR they be able to provide true resources, support and education to these families before the culture of death grows strong with seek-and-distroy prenatal testing, which may only raise their termination rates to the levels we have here in our own country.  CTR is doing very important work!  Please pray for their efforts.

Here are just a few of my friends who have adopted a child (or children) with Ds through RR; you may enjoy reading their stories on their blogs:  Meredith, Shelley  Ellen, Bethany, McKenna, Brigitte.  I have other friends who are in the process of adopting, working with RR right now. Adoption is a beautiful option!

Finally, I'll let Meredith and Micheal Cornish explain their adoption journey in their own words. They have three biological children (one with Ds) and three adopted children (all with Ds). God willing, they will be adding Monroe, and possible Aleksa, to their family very soon.


Saturday, October 23, 2010

The Birthday Celebration!

This is the year for TWO big birthday celebrations! Both my dad and Mike's dad turned 70! We were able to celebrate with Gramdpa D this week.  Kelley, Kelly, the cousins, Pat, Anna and our whole gang met up at Cranky Pat's in Oshkosh for some pizza. Here are some highlights...














The whole gang with Grandpa

























Monday, October 18, 2010

Enjoying the Weather with the Cool Cousins!

Thanks for letting us enjoy your kids for a few days, Tim and Suzy!  It went much too quickly but we all had a lot of fun!














































Erin at the Park

Since I am failing dreadfully in posting daily for the 31 for 21 Down syndrome Awarness campaign, I thought I'd do a post with some Erin pictures.  This girl melts our hearts...
















Thursday, October 14, 2010

The Kinfolk are Here!

Years ago we started calling Kelly and Kelley's kids The Cousins and it is still what we call them today.  And, of course, The Cousins call our kids The Cousins as well.  So, at times they get into it saying, "No, you're The Cousins.  And the reply is always, No, YOU'RE The Cousins

So anyway, yesterday the kids were waiting in excitement for cousins Aileen and Joe (Tim and Suzy's oldest two kids) to arrive for a visit. They are the other cousins.  As we were waiting and talking about some fun things we were going to do when The Cousins arrived,  Molly Grace and Aidan were getting confused.  They didn't know which cousins we were talking about and which cousins were going to be doing what! So, when my sister was here she refered to the other cousins as Kinfolk.  It stuck.  Yep, Suzy and Tim, you are now the Kinfolk from West Virginie.  Ha ha.  :)  Ok, we made the West Virginie part up just cause it sounded better.  We'll drop that part :) 

We are having a great time.  I am using this nice cousin visit as an excuse for my lack of blogging during the 31 for 21 Ds Awareness month.  Ha!  It's a great excuse.  Speaking of Erin.....she and Joe have hit it off!  He sat next to her at breakfast and talked with her, played with her and made her laugh.  He is SO good with little ones and I really think she gets his humor. I think they are building a little bond.  I hope to post some pictures of she and Joe, and the others, soon.  Right now Joe and Aidan are over at The Cousins for Conal's birthday party.  Which means they are in Legoland!

I do have one picture which highlights what the girls did before bed last night.....

Very perdy, huh?!

Monday, October 11, 2010

Molly Grace's Religion Lesson

As we're reading Molly Graces's religion today, she has a revelation:  "I didn't know God was a cheesehead!"

Sunday, October 10, 2010

It's the Soul of our Nation That is "Deformed"

I have "met" so many wonderful people in the Down syndrome community since Erin's birth.  It is certianly one of the extra bonuses that comes with the extra 21st chromosome.  I remember a dear friend who also has a daughter with Ds saying to me, "Welcome to the family", when Erin was born.  So true!  And what an amazing group of people make up this family!

One such family member is Kurt Kondrich. He has a beautiful daughter, Chloe, who is three years older than Erin.  I have not met Kurt in person, but we are both involved with the Internation Down Syndrome Coalition for Life.

Here is a little more on Kurt, his passion regarding the dignity for all life, and a powerful article he wrote...


Kurt A. Kondrich is a 20 year veteran of the Pittsburgh police force. Six years ago his daughter Chloe was born with Down Syndrome. This motivated Kondrich to return to college to earn a masters degree in Early Intervention. After graduation he retired from his law enforcement career to become Director of Community/Family Outreach for Early Intervention in the Pittsburgh area. Kondrich read a news report last week about the Sarasota, Florida abortionist who lamented killing the "wrong" unborn child during a selective reduction procedure to eliminate a Down syndrome fetus. The father of Chloe and advocate for Down syndrome children could not sleep that night and got up at 3 a.m. to write the following response to the news article:




Targeted for Termination


This past week I read an article that disturbed me deeply concerning a Florida doctor who had his license revoked . The article stated that the doctor "lost his license for mistakenly aborting a healthy twin during a procedure targeting a deformed fetus." The doctor was "targeting a fetus with Down syndrome", and he admitted he "screwed up". Based on the facts presented in this article one can conclude that if the doctor had properly targeted the unborn child with Down syndrome and successfully terminated this twin then he would have kept his medical license.


My beautiful 6 year old daughter Chloe has Down syndrome and has brought immeasurable good and Blessings into this world, and I have observed no "deformities" about her. Parents of children with disabilities have fought very hard over the past decades to have our children fully included and accepted in schools and communities. We have made great progress with "inclusion" since the days of institutionalization, but with prenatal testing we have now entered a slippery slope that is rapidly turning into solid ice. If our society devalues the life of a person with a prenatal diagnosed disability and targets them for termination then this represents the ultimate "exclusion" and eventual "extinction".


Currently 90%+ of children diagnosed prenatally with Down syndrome are "excluded" from ever shining their bright light in a lost world that has become obsessed with perfection and unrealistic traits. If the proper practice of medicine in our culture includes the skill of identifying and eliminating a prenatal twin who fails to meet the criteria of "normal", then we truly do need a massive overhaul of the "health care" system, and it is the soul of our nation that is "deformed".

You can access the article here.

Saturday, October 9, 2010

Homeschooling and Down Syndrome

I did get a question regarding 31 for 21, Ds awareness - woo hoo!  A friend is wondering if I am planning to homeschool Erin.  My answer is, absolutely, and I'm excited about it!  Since she is just three, I don't have a full curriculum for her, but we have just started using some early language/reading materials that can be found here and here.  I'll be doing plenty of research and trial and error in the coming years.  Additonally, if/when she requires outside assessments and therapy, we'll plan for that too, as we are now.  One little bonus is she is an extremely eagar learner!  She has loved every little thing we've done so far, be it reading, matching games, counting games, songs, fingerplays, videos, playdough - you name it!

I also found a valuable, free, homeschooling e-book to download.  It is called Homeschooling Children with Down Syndrome, by Amy Dunaway.  If you're interested, click here.

Today's Physics Lesson...

 As if they didn't have enough planned school lessons!  Here they go, devising their own physics lesson.

Teresa, Aidan and Molly Grace decided it was high time we had a swing in the front yard.  I suppose they tried tying the rope in the tree first, but when that didn't work, they devised this contraption...



It worked!  I'm not sure how much fun it was to stand in thetrash can but at least Aidan had fun.


And lil Seamus was watching with envy from the house....
 
Images by Freepik